links

This is our guidebook to some of the many resources we have used.

A few sites we recommend for information:

The National Fragile X Foundation
http://nfxf.org/

The National Fragile X Foundation's website contains over 1200 pages of content on fragile X syndrome.

The Fragile X Research Foundation
http://www.fraxa.org/

FRAXA was founded in 1994 by three parents of children with Fragile X, Katie Clapp, Michael Tranfaglia MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X.

 

Fragile X Research Foundation of Canada
http://www.fragile-x.ca/

This website is the number one resource for information in Canada regarding Fragile X.
Website also available in French.

Fragile X Syndrome
http://www.autism.org/fragilex.html

Description of Fragile X
Written by Stephen M. Edelson, Ph.D.
Center for the Study of Autism, Salem, Oregon

 

Conquer Fragile X Foundation
http://www.conquerfragilex.org/

A non-profit foundation based in Palm Beach, Florida with an extensive list of Fragile X resources.

 

U.C. Davis M.I.N.D. institute

http://www.ucdmc.ucdavis.edu/mindinstitute/

The M.I.N.D. Institute is an international, multidisciplinary research organization, committed to excellence, collaboration and hope, striving to understand the causes and develop better treatments and ultimately cures for neurodevelopmental disorders. Standing shoulder to shoulder, families, scientists, physicians, educators, and administrators are working together to unlock the mysteries of the mind. (Taken right from their home page)

Health Health Web Links
http://www.internet-health-directory.com/

Health and Medicine Website Directory.
A wealth of links to sites related to health and medicine.

Fragile X Association of Southern California
http://www.fraxsocal.org/

This site has a newsletter as well as a chat room.

 

Healthlink USA
http://www.healthlinkusa.com/hl/hlsearchsh.fwx?words=ALL&searchtext=Fragile+X+Syndrome

Eight pages of links to websites about Fragile X.

http://www.wrongdiagnosis.com/f/fragile_x_syndrome/stats-country.htm

Shows the stats per country. Rather interesting

 

www.diseasesconditions.com

  DiseasesConditions is A human built diseases and conditions directory. Directory for all consumer health diseases and conditions information - nutrition, cancer, diabetes, mental health, allergies, depression, anxiety and more. There is absolutely NO charge to use our site to find a top web site related to your quest.

 

And finally, some of the sites we enjoy visiting...

 http://barbie.everythinggirl.com/

For the little girls

 http://www.thewiggles.com/

For the boys and sometimes girls

http://clevermedia.com/game.php

Mindless entertainment

http://home.howstuffworks.com/

For the curious

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