About Us



We are a family of five, with three children affected by Fragile X Syndrome. The gene comes from the mothers side of the family and we can trace it back through genetic testing for three generations.

We decided to do this web site as when we got our diagnosis there wasn't alot of information about Fragile X Syndrome available that wasn't all about the genetics. Now there are more sites available, but you will get a look at a family, our struggles, successes, what resources we have compiled, what we have learned about Fragile X and what we are doing to make people more aware of Fragile X Syndrome.

We open our experiences up to you on this site and there are links to other wonderful sites, please read, take our experience and knowledge with you and share this site with others. We also have written a book called "Surviving Fragile X" that is available in it's draft stage. Please feel free to E-mail us with any questions and we will try to answer them or direct you to someone who can. Thank you for taking the time to explore our world.



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